2013 National ALS Advocacy Day

May 8 - 11, 2013

JW Marriott Hotel

(Headquarters Hotel - Registration and Sessions)

1331 Pennsylvania Avenue, NW

Washington, DC 20004

Would you like to help bring new treatments for ALS from the lab bench to the patient’s bedside? We invite you to help advance the search for treatments as the entire ALS community unites in Washington, DC on May 8 – 11, 2013 for the National ALS Advocacy Day and Public Policy Conference. The conference will empower you with the tools you need to advocate for policies that are specifically designed to accelerate the development of treatments for ALS.

The process through which a treatment must pass before it can reach people living with a disease is a long process, which begins on the lab bench with basic research and, 15 or more years later, ends with FDA approval. It is an expensive process, which can cost more than $1 billion. For every 10,000 potential treatments that are tested, only one actually will reach the bedside of a patient.

The public policy priorities we are advocating in Washington were strategically chosen because each priority, the National ALS Registry, the ALS Research Program and the MODDERN Cures Act, helps to overcome the challenges of treatment development. Ultimately, they may help us find the cause, treatment and cure for ALS. However, in order to succeed, we need your active participation in Washington. Members of Congress must understand not only how devastating this disease is, but also what they can do about it. With Congress looking to slash spending more than ever before, your participation this year is absolutely critical.

So please join us in Washington this May and help us bring new treatments for ALS from the bench to the bedside!